Sophia’s Story: Overcoming a Rare Pediatric Brain Tumor
She had been diagnosed with a rare malignant brain tumor, which presented her parents with the terrifying decision to either take her home and await the inexorable passage towards death or treat her immediately.
“I was too young for chemo and radiation, so my parents were advised to take me home and let me pass away peacefully.”
— Sophia, overcomer of pineoblastoma
- Sophia’s experience is a testament to the strength and how families should be educated about their options.
- Sophia’s brain tumor was uncommon and difficult to treat, and her parents didn’t know what to do.
- Despite the odds, Sophia’s journey was a success and she’s okay.
Her Parents’ Experience
Their daughter had a brain tumor when she was a young girl, and she would not have made it past her third birthday without proper treatment.
“He made no promises and told us that she was a very sick child. He said we would try the treatment, and if it didn’t work within a few weeks, we were free to go and try something else.”
— Mrs. Gettino
The narrative tells a complicated tale about childhood cancer and what it’s like to be diagnosed and have a family grapple with that diagnosis.
A Treatment with Sodium Phenylbutyrate and Analog Compounds (Antineoplastons)
In this instance, Dr. Burzynski has employed a therapy called antineoplastons. It’s a name for Sodium phenylbutyrate and its derivatives, which are known to treat various types of cancer, such as childhood brain tumors.
“She was put on antineoplastons when she was one years old. She’s now turned 21 in January and has never had any other treatment.”
— Mr. Gettino
This non-conventional therapy is an entirely new treatment for childhood cancer, and this approach has garnered numerous reviews from parents and physicians.